CBC·4 min read·medium
B.C. woman with rare autoimmune condition shares expertise in reimagined chapter of Winnie-the-Pooh
✦AI Summary
Sovay Desmarais, a retired nurse living with the rare autoimmune condition myasthenia gravis, has collaborated on a project to reimagine Winnie-the-Pooh to raise awareness for the disease. The project aims to use the familiar story to explain the daily challenges of living with muscle weakness and fatigue.
Her eye doctor confirmed something was not right — but it wasn't an issue with her eyes. A neurologist diagnosed her with a rare autoimmune condition called myasthenia gravis, or MG, which can lead to muscle weakness, trouble swallowing and even difficulty breathing.
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