CNA Lifestyle·4 min read·medium
Living with neurofibromatosis: How one woman helped build a support community in Singapore
E
Eveline Gan
✦AI Summary
Yessika Sutawijaya, who lives with the rare genetic condition neurofibromatosis type 1, has co-founded a support group in Singapore to help others navigate the physical and social challenges of the disease. Her efforts aim to combat the stigma and isolation often associated with visible disfigurement.
It took decades for Yessika Sutawijaya to meet another person with neurofibromatosis. The experience inspired the 45-year-old to co-found a support group so others with the rare condition can find the support and community she never had.
healthsocial justice
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